Monday, June 8, 2009

Cures for Hypnic Jerks

One of the most common searches that brings people here to sleep-disorders-help is for those trying to cure their hypnic jerk.

That jolt you feel just before dropping off. That startle when you’re safe in bed that feels like a falling sensation. That electric shock that wakes you from the earliest stage of sleep. Hypnic or hypnagogic jerks are a fact of life for many Americans.

They can be episodes of frighteningly vivid life-like dreams or a simple physical reaction that causes a mild surprise. Around 70% of people experience this phenomenon.

Nobody knows for sure but there are several theories as to the causes of the jolt while sleeping. It happens most often when we are stressed, in an uncomfortable position, over tired or anxious.

The viscous circle is that a hypnic jerk which wakes you up can make you anxious about falling asleep, which leads to another jerk. Anxiety leads to insomnia and the restless night and bad morning which result can all to quickly follow this cycle.

Some tips to help you minimize the effects.
  • Follow good sleep hygiene, develop a routine and follow it every night.
  • Watch what you eat before bedtime
  • A magnesium, calcium or iron deficiency may be to blame. First try to improve your diet, lots of fresh fruit and vegetables. Or try a supplement, with those minerals and vitamin C.
  • Heavy exercise too close to bedtime can have an effect. Try to limit heavy weights or cardio sessions in the evening. Conversely a gentle walk an hour before bed may help.
  • Smoking or drinking will reduce the quality of your sleep. One drink before bed may help you to fall asleep and avoid the hypnic jerk, however it will reduce the quality of your later sleep. If the jerk is severely dehabilitating then this may be a way to get things under control.
  • Meditation can help relive those negative feedback loops that will make you dread going to bed.
  • Maintain a positive outlook, and get some tips of relaxation or yoga. The techniques taught in even the most basic class may be enough to allow you to get your mind in a state where sleep comes naturally.
  • A relaxation CD played at night may be the answer. It will give your brain something to do instead of worrying and may quickly become an essential part of your sleep routine.
  • If the sleeping disorder is having a negative effect on your life then see a doctor, who may prescribe some medication to help you get that much needed sleep.
Most importantly remember that if you rarely or regularily experience a hypnic jerk you’re completely normal, take a few deep breaths and relax. The more you worry about it, the worse it will get.

61 comments:

  1. If you are suffering from sleep problems such as insomnia or obstructive sleep apnea, you need to consider this problem seriously and adopt specific measures at the earliest to get back your sleep. Regular exercising is one of the options to ensure sound sleep at night. Altogether, if you are unable to get adequate sleep during night, you can undertake certain initiatives to overcome your sleep problems such as fixing your sleeping as well as waking schedule and abstaining from alcohol, nicotine, tea, coffee et al before hitting the bed.

    ReplyDelete
  2. I had this problem too - it was dementing as I couldnt get any sleep. I tried supplementing with magnesium and the problem subsided

    ReplyDelete
  3. My 17yr old son wakes up absolutely terrified and it takes him ages to calm him down he jumps out of bed appears to be trying to run away from the situation .....whilst he tells me that he is not dreaming at the time of the sensation it certainly appears that he is dreaming immediately after. It is also more than a split second jerk and he tells me that he feels like he is falling for what seems like ages. It is frightening to watch and even more frightening for him to experience it. How can he try and control it?

    ReplyDelete
  4. i just got this hypnic jerk a day ago and it hasent stop yet. im soooo scared of how it make me feel. I cant get any sleep....

    ReplyDelete
  5. what about jerks that are associated with an anxiety attack? arms, legs, shoulders, no certain body part; relentless till the anxiety passes....

    ReplyDelete
  6. Oh, I know the pain! I have occasionally experienced this in the past, but ever since I moved in with my boyfriend it's gotten worse and worse to where it's uncomfortable for us to lay together at night! The twitching also occurs during the day randomly, but I'm losing sleep because I dread the twitches! Last night I had the worst one ever...it was the loud sound if a POP inside my head accompanied by intense shaking and the strongest twitch I've ever felt in my LIFE! I'm terrified to go to sleep and Embarrassed to try to cuddle anymore. I think it's stress but I don't know how to fix it OR go about discussing it with my boyfriend! I'm so tired and shaky all the time now'

    ReplyDelete
  7. I suffer from hypnic jerking throughout the night, it doesn't wake me up, but it wakes up my partner. She usually has to wake me up and boot me off to the guest room! I'm going to try some of the vitamin supplements and see if they work. More info later!

    ReplyDelete
  8. I suffer from hypnic jerking too.It keeps me awake and I have to take Temazepam it helps me to fall asleep but I do not want to stay on it for the rest of my life.Looking for help.. I have lost 3 jobs because of it.

    ReplyDelete
  9. Bm
    I have had this hypnic jerks for 6 weeks .I saw my doctor and gave me temazapam for the next three months.This make me sleep now unlike when they started.He said they will eventualy go.

    ReplyDelete
  10. I thought I was going mad until I saw on this site I'm not alone. I have so many hypnic jerks throughout the night that I fear sleep. I nearly get to sleep and then I'm shocked awake again by my jumping muscles. What the?! I don't know what to do. It's driving me nuts.

    ReplyDelete
  11. omygosh. these are awful! the second i dose off, that twitch/jerk happens and if jolts me back awake! my heart pounds and i get really hot. after i calm down and finally drift off again, the whole freakin cycle happens again! this suuuucks!!! has anyone found any relief besides sleeping pills?? i used to be on them, but would like to avoid them if possible.

    ReplyDelete
  12. Great Blog I am sure will be helpful for many and solving problem of snoring for others. Keep up a good work for Sleep Apnea Cures.

    ReplyDelete
  13. The last 2 nights once o was woke up at 2 am and this morning it was 5 am and soon as I would start to doze BAM! major muscle jerk. Over and over till I just give up trying to sleep in. I have no problem getting to sleep. Wondering if alcohol is the reason for that. Could excessive drinking be causing this and I also just started a new medication celexa?

    ReplyDelete
  14. I've been having it for years ... it come & goes. Thank God for the Internet & this type of forum where everyone can learn from. Went to various doctors & neurologists years ago - they thought I was crazy & never heard of this ... did not even have a name for it & said it had to be Myoclonic seizures (Epilepsy). Epilepsy drugs did not really help. I think the tips above should help everyone. BTW (& bad news for all you wine lovers) I'm sure that alcohol aggravates the situation. Too much TV & time in front of a PC also not too good for it.

    ReplyDelete
  15. I also been having this happen about 3 to 4 times a night, just when i fall asleep i jerk out of bed and run into the hallway, then i go back to be and do it all over again , then around 3 or 4 am i fall asleep and sleep for about 5 hrs , dont understand, well i have done a lot of research also, i think its MSG found in everything we eat, it is a excitotoxin , over stimulates the nerves and crosses over the blood brain barrier, i have been taking every vitamin and changed my diet and drink a lot of water so i will see if my efforts pay off, i will pray for you all

    ReplyDelete
  16. Wow! I have thought until now that I was the only one in the world with this problem! (How arrogant huh?) But every doctor/neuroligist I saw had no clue about my problem -- this hypnic jerk syndrome. I have had this problem off and on for ten and half years now and am currently enduring another episode so far a week long now. I resort to over the counter sleep aids and on dire occasions valium. Wish I had more suggestions to offer but just knowing I am not the only one does help. Good Luck. I wouldn't wish this on my worst enemy.

    ReplyDelete
  17. Yeah I have it too. I have a slight variation needless to say. I hear myself make a noise like a short snore that jerks me awake the second I have dropped asleep and this just repeats until I either get past it or can bear it no longer and take a sleeping pill and sometimes even that doesn't work. I thought it was adenoids til my Dr said they shrink in adulthood and it was hypnic jerk. I didn't believe him at first cos I thought it was only body jerks but now I am convinced. Last time was 3 months ago and have it again now...no reason that I can work out. I have cut out caffeine as of this week. I know that the active ingredient in decondestants makes it very bad so I steer clear of them, but it is totally depressing. Glad I found this site...I'm glad for everyone's input - at least we know we are not alone.

    ReplyDelete
  18. Im getting these strange experiences just before i fall into sleep. I feel fine leading upto sleep; as in my eyes are closed my body is relaxed and i start thinking of random situations that fill my mind to a point where i start to get bored with thinking, I get lazy and can feel my self becoming light and then I steadily drift into sleep.... im sleeping, but still cognisant of what i can hear in he room, I can hear something moving like a plastic bag in the corner of my room and then i hear a sound like a growling sound right above my face #@$%!!!! Something happens, My eyes flick open I didnt even lapse into a dream but i feel my heart racing, I become confused and try to think of 101 reasonable explanations. While im thinking i can feel my matress swaying like a water bed, as if i had just jumped on it and caused it to ripple to and throw. I stay awake for a few minutes and attempt to slow my heart rate down by breathing slowly. I find myself back to square one cautiously falling back to sleep.@#*%!!! This time i awake with the feeling of Air being rushed into my nose, like i've been submerged under water and have come up for air, but its not as if im losing my breath, its more like compressed air being forced into my lungs. I dont know what is causing this i have a feeling that either 1, I've got an unexpected visitor in my house 2, Im overly stressed to the point where im going crazy with effects of sleep apnea and 3, It's the new Gym diet that I've started. But it cant be number 3 because it has been happening before i started the Diet.

    ReplyDelete
  19. I have been experiencing these hypnic jerks for 6 years but didn't have the proper term to describe these jolts and abrupt awakenings all night long. I had a sleep study which showed that I have these jolts about every 30 seconds all through the night (some more strong than others).

    Like many of you, I have been jolted out of sleep over and over all night long, just when I fall asleep. My dr.s, including sleep neuros. seemed to not have a clue what I was trying to describe. I did find a product called Natural Calm ionic magnesium at GNC and also at my food coop and it worked great for a while . I put 1 tsp in hot water and drink before bed. I thought it was a cure but for some reason now, it isn't working as well since last week. I have also tried Advil PM, which works by just making me really relaxed so I sleep through the jolts. Unisom and Sominex are similar but w/o the Advil.

    I am really glad to read about others who have experienced this as it is really scary in the middle of the dark night to have these jolts waking you all night long.

    I wish you all the best... I often wonder if this is a result of my neck injury or previous concussions? My husband has a low back injury and he seems to have restless leg syndrome. I wonder if my head/neck jolts and awakenings are from an injury higher up on the spinal cord. Do any of you have neck injuries (e.g. whiplash)?

    ReplyDelete
  20. I've been having occasional bouts of these for about a year now. Sometimes it is more of a "wave" then a jerk - I feel like I'm being lifted then set back down, which takes two or three seconds. Other times it is a fast jerk though. It happens every thirty seconds to several minutes, and I believe it is happening all through the night even when I sleep through it. I've been having them for the last three nights, and thanks to this site I'll try the magnesium supplementation.

    ReplyDelete
  21. Hello all,

    I am so glad I googled this - as bad as it sounds Im delighted to read about your experiences.

    This has been happening to me for over 10 years now. The last time I had a neurologist check me out was in 2006 - he didnt mention Hypnogogic jerks to me - He sent me forward for Lumber Punture, CT scan and MRI - all of which came back clear.

    The last few months I have had the jerks pretty severly and the headaches and numbness that follows has become alot worse.

    Today 16/08/2011 I went back to visit the Neurologist and thankfully I didnt get to see him - but one of his understudies who, when I explained the jerks and headaches explained HYPONOGOGIC JERKS to me. FINALLY after nearly 11 years I have a name for what I beleived was going to finish me off eventually. He has arranged a scan and more tests but feels they will be clear. And according to HIM - it is most likely caused by STRESS at work, maybe too much alcohol intake (even tho I dink moderatly and always at weekends) and the primary reason is SLEEP DEPREVATIOn caused by (you guessed it ) these JERKS. Its a vicious circle. So from today on Im going to try my best not to worry any longer and try accept them, avoid too much alcohol, exercise more and get back to living my life instead of silently living in fear.

    I promise you all i will report back if there is any improvement - I hope so- although I have a feeling its something we are all going to have to learn to live with - although I think that knowing they are "harmless" can help us control our stress about them.

    Good luck to you all - so happy to have read your comments.

    Cheers

    Phil
    Dublin
    Ireland

    ReplyDelete
  22. I have these to highly annoying just had 1 a sec ago. I remeber i was like standing on a chair and it tipped over and i fell and thats wen i jerked awake! I hate this :(

    ReplyDelete
  23. I have this problem as well. My neurologist likes to call them sleep starts or hypnic jerks. I've had this problem on almost a nightly basis for six months now. My neuro says they are part of a wake/sleep transition disorder and very understudied due to the small number of people that suffer from them. I jerk during the transition from wakefulness to sleep and often from sleep to wakefulness as well. It's almost impossible to transition into sleep during them. The physical jerk is violent but the other sensations that go along with it (increased heartrate and respiration, noise in my head etc) are very arousing as well. My neuro tried me on a few different medications including seizure meds and nothing has truly helped but benzodiazepines. I take clonazepam. I dread being on it long term, as does my neuro, but it's the only thing that helps. I've tried many, many supplements and so far taurine is the only thing that helps some. I also get BMF (benign muscle fastilations) during the day which are annoying. Neuro says both conditions are harmless other than the stress and lack of sleep they cause. I belive stress worsens the problem. I'm also a competative swimmer and I think intense exercise does too. Best wishes to you all! Someone should start a forum for this condition.
    Kate
    SW United States

    ReplyDelete
    Replies
    1. Hi Kate! I have had the same exact problems as you. BMF during the day and sleep starts all through the night that can keep me awake until the next day. I have had this problem for the last two years and have noticed the same triggers as you have. Anxiety, too much exercise , and although rarely, can happen for no apparent reason. Once a jerk occurs the anxiety of the first few seems to make it worse and worse. A few things I have done to help is getting out of bed to have a late night snack and water; seems to relax me. I also try to trick my mind by "wanting" to getting a sleep jerk; this also helps. If all else fails, I'll keep my eyes open and challenge myself to not fall asleep. I was on benzo's for awhile and eventually weened myself off trying different ideas. It sounds as though you are starting to figure out your body though and hope your transition disorder gets better.

      Delete
  24. Also, I should note that if you have this problem see a neurologist that specializes in sleep medicine and have a sleep study done to rule out sleep apnea and restless leg syndrome (which can cause leg movements during sleep). Hypnic jerks only occur during the wake/sleep transition. Movement during sleep itself is often something different. Lastly, the problem is most often primary with no known cause, rarely is it secondary to another major condition (ALS, lipid storage disease, kidney failure etc). However don't make yourself sicker worrying you have those conditions because your jerks will get worse from the stress.
    Kate
    SW United States
    Kate

    ReplyDelete
  25. So THAT is what this is.. I've had this demolishing my sleep for years now, I've thought it was some heart disease or something and I've been to doctors doing those EKG-thingys with wires on my chest and they all say it looks normal.

    I have asked plenty of people and no one ever understood what I meant, either they say it's just a dream or imagination, been bothering me alot.

    People usually tell me to stop sleeping all day and it will be better, but what they fail to understand is that I'm so exhausted due to this that I need all the sleep I can get to feel normal.

    Lost my job due to this because several days in a row it totally prevented sleep, was too scared to fall asleep and when I did I would jolt up and just increase the level of fear of sleeping.

    So thanks for making this blog, now when I know the proper term for this I will be able to find some professional help and maybe in a while be able to get a good nights sleep!

    ReplyDelete
  26. ..i got these last year, i was so frightened, it was as if somethimg was preventing me from sleeping, it started with me waking up at 2 a.m every night and then one fine morning when i had my period i got these frightening jerks. i could just manage about 4 hours of sleep a day...turned out i was anaemic...after a few months i was back to normal but it recurred after many months...when the last jerks subside i got head aches in my sleep...when they subsided i get sort of like hot flashes and trembling...i'm assumming its all menopause related as i am of that age...i took the homeopathic pills called aconite.. that helped...

    ReplyDelete
  27. I've had hypnic jerks for years. I can remember them from my childhood... just less often. I am on CPAP for sleep apnea and have been for ~3 years. Still had the jerks periodically. Recently been going through a particularly stressful period and they have increased. They are always more frequent when my daytime stress level is higher... and it does not help that it interferes with my much needed sleep. My sons kept telling me I needed 10 hours of sleep a night. I told them that I had been recording my hours of sleep for a long time and that 8 hours a night was enough, so long as I made up missed hours by going to bed that much earlier and still woke up at a consistent time. Last night, I had sleep jerks / hypnic jerks all night according to my husband. Not incidentally, yesterday I had a very negative interaction with one of my docs/(a quack). The latent stress showed up all night as I had hypnic jerks all night. Recently, my sons begged me to start going to be earlier so that my number of hours of sleep would be 10 hours. I have done this for just under 2 weeks with EXCELLENT results. I believe that the '30 minutes here, 2 hours there' that I have missed along the way have added up to create a sleep deficit that needs some 'payback time'. I would highly recommend that you go to bed at the same time every night and wake up about the same time every morning. I KNOW life is hard that way... but, there is no pill that can substitute for sleep, and there is no substitute for lost sleep... except an extra hour or two of sleep consistantly over time until you've paid your 'sleep debt' off hour for hour. It doesn't just go away... but it can get better if you make yourself go to bed and allot at least 8 uninterupted hours to let your body sleep... and do 10 hours a night for a few weeks (CONSISTENTLY) if you have a LOT of sleep debt to catch up on. There are no pills... no shortcuts... nothing that will repay the sleep debt, except sleep. If you have notable snoring, get a sleep test and see if you have sleep apnea. It can be treated and will help your quality of sleep... there there is NO pill that will help your quantity of sleep if you do not put your butt in bed early enough to get 8 hours of sleep every night. JoanNCville

    ReplyDelete
  28. I'm also having these horrible jerks just as I'm falling asleep. It feels like as I'm woken up I have a massive adrenaline rush so feel anxious and then can't get back to sleep... And even when I finally drift off, another jerk happens. I'm also wondering if these jerks could be linked to a concussion as I didn't ever suffer from them until I was badly concussed at the end of June. So great to be able to read posts about this on the forum. I'm hoping meditation and relaxation will help. Good luck everyone :)

    ReplyDelete
  29. i´ve been havin these jerks for months now.
    they keep me awake for hours, because, as soon as i start drifting off, the jerk jolts me wide awake...and it happens like every couple of minutes...
    once i finally fall asleep,if i wake up too early, say 5 am, it starts all over again.
    my neuro made me go through all sorts of tests and they all came back normal.
    i also suffer from something which resembles painful sensory polyneuropathy, but have not yet been diagnosed.
    i don´t know whether these two conditions are connected or not, but i`m not happy.
    my neuro has recently put me on low dose doxepin for pain management, but it seems to make my hypnic jerks situation even worse.
    she also recommanded clonazepam, which i have not yet tried, because i`m afraid of getting addicted.
    (sorry for any spelling or grammar mistakes- i`m from eastern europe, so english is not my mother tongue.)
    good luck to you all!

    ReplyDelete
  30. From the comments on here and what everyone has been describing, these are exactly the same symptoms that I have been having. I can feel myself getting tired and relaxed in bed and as my mind takes me off into the first stage of sleep, I am immediately jerked awake with a whole body spasm.

    At first it was very much similar to the feeling of falling and my body was trying to catch itself, but as time goes on its become just a whole body muscle spasm right between the stage of awake and about to fall asleep. It never occurs when I'm fully awake in bed. These body jerks can occur as frequently as every 3 minutes or up to 20 minutes. Therefore I'm not getting anymore than a total an hour or two of sleep a night and its never consecutive.

    This has been going on for about a 2 weeks, and I'm exhausted. The only part that is unique for me from these other comments, is that I have recently quit drinking alcohol before bed. I used to be a heavy drinker but only right before bed (used to use it as pseudo sleeping aid). I would have a few drinks right before bed and I would fall asleep immediately. Ever since I've stopped drinking I've been experiencing these symptoms exactly. I wonder if I've never noticed them before because of the alcohol or if they could be caused by the on set of quitting. I don't want to or care to start drinking again in the evening to help me sleep but I will definitely have to try these supplements everyone has been so gracious to comment about. If anyone has a similar story please add it to the blog and I will be checking back on this site regularly.

    Thanks for everyone telling their stories. I feel comfort in knowing I'm not the only one.

    ReplyDelete
  31. I have been having these same problems recently. For the past month on and off. I went four days with absolutely no sleep whatsoever. The first time was when I got sick and had pneumonia. As soon as i would start to doze, I would jerk and wake right back up. And then it would happen over and over and over again. It wasnt until I got put on anxiety meds that it stopped. So I think mine are caused by massive anxiety.

    ReplyDelete
  32. I have had these for years. The spasms are violent. Sometimes I feel like I've been kick in the chest. Sometimes I actually hear myself make a gasping noise. It got so bad that I started taking sonata/zaleplon 5-10 mg at bedtime. It's a short lasting (4 hours) sleeping pill. 10 mg always works; sometimes I can manage with 5 mg. There are no side effects the next day from the drug, but I have no idea if there are long term side effects. I dont have a problem falling asleep if I am awakened, but since this drug only lasts 4 hours, it could be taken again within a certain time frame if needed. I sucks to have to take drugs to fall asleep though. I am going to look into the iron/calcium/magnesium that someone mentioned.

    ReplyDelete
  33. I have had hypnic jerks mostly after i was infected with thyphoid fever.It was 3 years back.I usually get them when i sleep in afternoons.I tried many things.I have found 2 solutions.
    These jerks happen more to people who have had weak nervous systems.
    They happen due to electrolyte imbalance.
    2 solutions are
    1)Drink tropicana Orange juice one glass 30 minutes before you sleep.
    2)Take a palm full of table salt & then move your palm slowly all over your body especially nerve centers like head spinal chord and shoulder hands legs.Then throw the salt away.This is better if someone else does it for you.Not sure why it helps.It may be conducting some negative ions away from your body by electrical conduction.

    Send a mail to me on shiva321@yahoo.com if this helps you.

    ReplyDelete
  34. Hi All, great site!! I've had these jerks for years now and like many of you, thought I was the only one in the world to have them! It's great to be able to put a name to it. I'm from New Zealand and to date, no known cure! Sleeping pills help for a while then like everything else, your body gets immune to them. Vicious circle as you say. If I come across a miracle cure, you will be the first to know.
    Faith
    Wanganui
    New Zealand

    ReplyDelete
  35. Sorry I just realised I forgot to add something to my blog - see above. Clonazepam is the drug that I have been prescribed and been on for a long time. Also just a quick comment regarding alcohol. I have found that if I have one or two drinks then my jerks are much worse but if I have, say, a bottle of wine then I sleep like a baby. The only problem with alcohol is that you get immune to that too after a while and end up having to drink more and more - not good. I have stopped using alcohol to help me sleep and just drink socially. I belong to a Medical Centre who has locum Doctors who come from overseas - mainly America - and are here for only a year so I ask each new Doctor if they have brought a cure over with them!! Nothing yet I'm sorry. The biggest thing to remember is that you are not alone and that it appears to be a harmless, albeit HORRIBLE, condition. I have had this condition for so long and could write a book on it! If anyone wants my email details, let me know. :)

    ReplyDelete
  36. Re post dated November 3, 2011 5:36pm

    I would love a chat re what you are going through as it sounds like we have the same deal going on. I'm currently exploring different methods to get some decent sleep and to stop scaring the bejesus out of my wife (and I).

    Please email me at joebennett90@gmail.com

    Thank you

    ReplyDelete
  37. Brilliant blog, I was getting worried I was one of very few out there who gets these jerks! I'm glad I'm not alone and it is actually quite common. I've always suffered with it for as long as I can remember but usually it'll happen for a few nights and then not happen again for months. I can live with it but feel bad for my boyfriend as it scares the sh*t out of him every time cos sometimes i'll wake up with such a violent jolt with my whole body. I don't always wake up fully when it happens though, someitmes i can just roll over and fall straight back to sleep again. but sometimes it'll happen 2 or 3 times a night. I'll try the magnesium suggestion but might mention it to my doctor and see if there's a link at all to low ferritin levels which i also suffer with.

    ReplyDelete
  38. It's quite funny how these jerks are not the same for everyone ie some have them as they are about to go to sleep, some wake up from sleep, some have them every night and some only now and again! I'd be more than happy to have them every now and again as opposed to every night!! Drop me an email if you wish to exchange thoughts and ideas.

    Faith
    New Zealand

    faithandduane@xtra.co.nz

    Cheers

    ReplyDelete
  39. Hi , thanks for all the above info re hypnotic jerks. I finally decided to google this problem due to another night sleeping on the couch. There had to be someone, somewhere who knew what I was talking about. My husband has been suffering with them for at least five years. Unlike other bloggers on this site, they don't bother him. I lie there counting and he has one ever 25 to 30 seconds. I am definitely going to try him on the magnesium supplement and a glass of orange juice before bed. Wish me luck. I hope and pray for you all that you will find the answer to a peaceful nights sleep,

    Val. Sydney, Australia

    ReplyDelete
  40. The fact that they don't bother your husband is absolutely amazing!!! My heart goes out to you having to sleep on the couch! I have heard that certain fruit juices do help although you have to watch how much you have due to the sugar content in them. Good luck and will report any miraculous cures/remedies if I hear about them. :)
    Faith, Wanganui, New Zealand

    ReplyDelete
  41. Hi, I posted a while back about my condition calling it "hypnic jerks" or "sleep starts". I am now on the brink of getting a more official diagnosis from my neurologist, whom is a sleep specialist. He says sleep medicine is in its infancy and that's why so little research is done to help us with our condition(s) and why 95% of Dr's have no clue as to what to diagnose us with or how to treat us. Hopefully as new research is being done we will have more answers and treatment options. Here is the one known medical study....
    http://www.journalsleep.org/Articles/240711.pdf
    Best wishes to you all.
    Kate
    SW United States

    ReplyDelete
  42. I have these awful episodes and find them very distressing, I think I am dying, and its very difficult to calm down afterwards.I am taking St Johns wort at the moment to try and calm myself down, its worth a shot!!!!!

    ReplyDelete
  43. I ve had these for the past year and a half. It almost always happens when someone tries to wake me up when i am asleep. I am startled. wake up with frightened with a jolt and gasping for breath. My roommate wont wake me up anymore coz it scares the shit out of him. My friends would joke about it, so would i. But now its become more regular and frequent. Whenever anyone wakes me up i wake up scared. Its different when i wake up on my own. I dunno what this is. PLEASE HELP. MY PARTNER IS FREAKED OUT BY THIS

    ReplyDelete
  44. I have been suffering relentlessly with this for 6 weeks now, mine is not just jerking in the limbs but also the face and throat, including the tongue and vocal cords. It started out with involuntary swallowing each and every time I started to drift off to sleep, then it switched to these odd vocal sounds like "umm" or "hmm" on the first exhalation transitioning to sleep, and now the jerking in the arms, fingers and toes. My primary care doctor was COMPLETELY baffled and said she had never even heard of such a thing! I got a referal to a neurologist figuring I'd at least get some answers and treatment, he called them "hypnic jerks" or "hypnagogic myoclonus" but that there is absolutely nothing that can be done to treat them and that I will just have to learn to live with them!!!!! I finally passed out after 4 weeks of getting basically NO SLEEP whatsover and went to the E.R. and they gave me a 20 day supply of Xanax .5 and diagnosed me with Generalized Anxiety Disorder after CT scan and all the tests coming back normal. The Xanax has definitely helped me to get some sleep the last 2 weeks and to function again at work, but now I'm almost out and don't know where to go from here and I am so despairing now that this is permanant!!!!!! I am going to try the Natural Calm Magnesium tonight hoping that may help, seems like all this could be a biochemical imbalance from what I've read, yet ALL my tests (iron, magnesium, thyroid, etc) and bloodwork came back normal. I'm at a complete loss, haven't been under any stress whatsoever, and don't suffer from or ever been treated for depression so that rules out that and SSRI withdrawal, which is the only other thing I found that comes even close to describing this condition. Maybe this does have something though to do with Serotonin since the symptoms are so similar??? Just grasping at straws here as I'm so desperate for help and its very clear I'm not going to get it from the medical community.

    ReplyDelete
  45. Has anyone had any luck taking Lyrica? Seems to have the same effects and potency as the benzodiazepines but without all the longterm and harmful side effects. Also are there any other blogs to support those of us with this condition, would be nice to have some interaction on a daily/weekly basis, I feel so alone yet it seems there are quite a lot of us out there...

    ReplyDelete
  46. I am happy to correspond via email. My email address is above.

    Faith
    Wanganui
    New Zealand

    ReplyDelete
  47. After years of suffering from life wrecking hypnic jerks I have two natural solutions for myself.

    Loads of Natural Calm magnesium. Sometimes I need to take about 3 times the DRA, like 900 mg. I will suffer from loose stool the following day, but typically it helps to break the viscous cycle and I can start reducing the dose from there. At least I get a full night's sleep.

    The other thing I have tried which has worked wonders is 1/2 teaspoon of baking soda. It totally eliminates the jerks. The only problem is that too much causes just simple insomnia, without any jerks.

    Magnesium and baking soda are both alkalizing. And it is proven now that a too acidic environment causes anxiety, and vice versa.

    If you go to earthclinic, look for Ted's recipe on baking soda and apple cider vinegar.

    ReplyDelete
  48. Hi, thanks for the info on Apple Cider Vinegar and Baking Soda. I went onto the earthclinic site but couldn't find how much to actually take of the ACV and Baking Soda. Can you tell me how much of each you take. Many thanks. Faith, Wanganui. New Zealand

    ReplyDelete
  49. I had hypnic jerks for about 7 years, I did chelation and went on a proper diet that worked to stop it after about 3 months.
    I do advice not using any products that have aluminum in them (deodorants, soaps, using aluminum cookware, drinking from aluminum, etc.

    Avoid eating meats completely!!! All meats have insecticides & toxins in them.
    ~ Eat only raw organic, none irridated veggies, greens, fruits. melons, berries and nuts.
    This will correctly balance your PH level.

    Stay away from fluorescent lighting, all fluorescent & CFL lights emit mercury vapors.

    Exercise in the mornings, not the evenings, don't eat before sleeping.
    Drink alkaline enhanced purified water, avoid tap water.

    Sometimes tonic water will lessen the strength of the jerks temporarily.

    Above all DO NOT TAKE ANY PHARMACEUTICALS, they will make the jerks worse.

    Gary
    garshipp@yahoo.com

    ReplyDelete
  50. TED'S APPLE CIDER VINEGAR AND BAKING SODA FORMULA

    "Two tablespoon of ACV plus 1/4 teaspoon of baking soda. This has a PH of about 7. Take this two to three times a day on an empty stomach."

    I have not tried this myself but I read that it has helped with hypnic jerks. I will try it today and will report back.

    ReplyDelete
  51. Hi, I have suffered with jerks for over 10 years now. After visiting several sleep clinics and neurologists they still are unable to determine exactly if i have myoclonic jerk hypnic jerks or a form of epilepsy. the reason they are unable to identify these are due to huge difference in episodes i have from very mild jerks to fit like seizures

    In the last 12 months i have decided to stop taking prescribed medication due to the way my body and mind reacts to these yes they do suppress them but my life suffers in different ways ie my mood swings, concentration.

    I do not recommend anyone follows stopping medication without at first consulting their GP.

    I personally have found my sleep has improved in the last 12 months with the help of a good diet, excercise and routine.

    Things that have helped me.
    Drink lots of water- try hot water if you can.
    cut out wheat, pasta, cereals etc
    use goats milks instead of cows milk
    magnesium supplents
    eat organic if you can afford especially fruit and veg
    try to eat fish instead of meat
    excercise every day even if its just walking.
    most important
    night routine follow this go to bed early
    read if your not tired
    remove all electrical items from your bedroom TV stereo etc.
    Do not watch tv in bed its a easy distraction.

    The above is not a cure and i do still suffer and had a really bad week of sleep 2 weeks ago but i do find my sleep is a lot healthier now. my jerks have greater distance between episodes now, i don't believe their is a cure for this but we can certainly make it more comfortable to live with and my thoughts go out to all of you who do suffer, your not alone, your not going mad or crazy. Do speak to someone about it and i hope you all find a happy medium to continue with your life and accept that these episodes can be controlled.

    Take care Jonny ;)

    ReplyDelete
    Replies
    1. Thanks for sharing your experience and your input Jonny. I believe the biggest point to get across to those whose "jerks" have just started is that you are not alone and if you find you have been going for weeks without sleep you need to seek medical help because sleep deprivation just exacerbates the situation whereby making your coping mechanisms fly out the door. Cheers
      Faith
      New Zealand

      Delete
    2. I also starting taking a magnesium and melatonin suppliment before bed and they have subsided.

      Delete
  52. I'm dealing w/what FEELS like hypnic jerking, but it's not just when attempting to sleep. It will start with one leg jerk, then perhaps move to an arm, or my eye, then my back, which will jerk multiple times before moving to another part of the body. (rinse and repeat) I've had 14+ back surgeries due to a benign congenital spinal tumor that wasn't discovered until I was almost 18, but this is completely different than any of the "regular" back pain/spasms that I deal with. I only mention the tumor because it's always assumed by my multitude of Drs that it's simply neurogenic/pathic, depending on which Doc I talk to, and on what day. It's going to drive me to drink one of these days. I have to take a Xanax before I try to sleep at all, as the jerks have completely interrupted what little sleep I used to get before... when I'd get at least 90 minutes before having to wake and reposition/take some medication, then wait ANOTHER 15 min to fall asleep, etc. Then weird part about this being that I feel the jerking very prominently, but very rarely does anyone else notice it. Anyone out there getting these more prominent and repeated hypnic jerks? Jennifer @blueeyedangel304@hotmail.com

    ReplyDelete
  53. I have been getting these extremely bad for the past couple days. It has been causing me to not get any sleep at all. I am 31 years old and was diagnosed with Fibromyalgia a few weeks ago, so I know the reason why this is happening, but I need a cure. I am so exhausted all I want to do is sleep but I feel like I cant get comfortable. I get the hypnic jerks when I'm awake as well but they arent as extreme when I'm awake. It is extremely annoying. Thank you everyone who has posted your experience. I really thought there was something additionally wrong with me. I will definitely be speaking with my Rheumatologist about this when I go back in a few weeks.

    ReplyDelete
  54. Hi there to the latest blogger who suffers from fibromyalgia. My only suggestion would be, as you are not seeing your Rheumatologist for a few weeks,you really need to get some sleep in the interim. Sleep deprivation is the most CRUEL thing to have to deal with and as I have said many times, your coping mechanisms go out the window if you are sleep deprived therefore you need to see your GP about getting something prescribed to help you sleep. I have found that there is a stigma attached to being on or associated with any form of sleeping tablets but believe me, they saved me from going totally insane! You may only need them for a little while but it is imperative that you get some sleep in order to cope with what is happening to you. Keep us informed as to the outcome of your visit to the Rheumatologist. Take care.
    Faith
    New Zealand

    ReplyDelete
  55. I went into the ER because everytime I was going to go into deep sleep, it didn't feel like I was falling, but it did feel like I was dying, shutting down, which later would quickly wake me up. This gave me anxiety, and now im terrified to sleep because I think im gonna die everytime, so now im really screwed myself up. Doctor gave me something called atavan. It worked the first night but not the second. or third. Im gonna try to get a sleep study done so i can get this crap figured out.

    ReplyDelete
  56. Hi Joe - yes can relate - it's a real horrible condition. Would love to hear how you get on at the sleep study and what they recommend.
    Cheers
    Faith
    New Zealand

    ReplyDelete
  57. Is there with you once you are about to enter deep sleep very happy and then suddenly I felt that you drop and shake your body shock?

    What it called [hypnic jerk] and this happens often during sleep very light when body temperature back down and starts the heart بالتباطئ and leaves the brain controlling muscle, the brain invented dream where you feel small drops from the top of a slope for example ...

    So, the next time you wake up in a panic, remember that you ar dying interruption systems of your body tired and fatigue and thank God he returned you to life again

    ReplyDelete
    Replies
    1. Your not actually dying. Your brain just misinterprets the information and sends a signal to make you move.

      Delete